March 2004 DullesDaily Updates
12:45AM to 1:15PM Paige has been up for a little bit before Hospice gets to the house for her eval. After Sandy leaves Paigee is back to sleep.
2:00PM to 8:00PM Maybe twice during this period Paige was almost awake for 5 minutes at most. Paigee's Social Worker Mindy and Aunt Liz helped to formulate an idea how to talk to Paigee indirectly without actually saying she was dying. She listened without getting upset, we took this as a sign that it comforted her and that it was what she wanted to talk about. Although she is asleep we have tried to talk to her to help ease her worries about letting go.
Categories: Daily
posted by c @ 1:33 PM
3 Comments:
Taylors,
I was amazed everyday how much stronger Ben was than I gave him credit for. I am totally rocked by Paige's talk with your nurse! She's got some superior guts, even with all this crap! A parent always wants to protect his children from harm, and when harm comes, I know that I was always surprised how well they weathered, often better than I. At Ben's memorial, I told folks that Ben was the closest thing to a true Jedi that I have ever seen. This is so true.
A dream I had just a few days after Ben's passing was of myself playing soccer with Ben and a bunch of his 7 yr. old friends. Ben was on my team and it was us against them...we were all having so much fun. Ben, however, was invisible to all but me, so he could easily steal the ball and pop it into the goal. We kicked arse! Later, he and I sat on a bench and cried together. That dream, for me, was proof positive that he will always be with me in the most wonderful way (my little secret weapon). I thank God for the seven short years we had...better than nothin', eh? I hate the fact this happens, to all of us, but I've met so many beautiful people as a result...the Taylors, for instance! May the Force be with you!
Thanks for the update, Christopher. I love the post by Ben's father! Very much in keeping with Paige's spirit: one of her nicknames from Rosemary and me is "Special Ops", she is a total surviver in every sense of the word. I love the fact that when she wakes up, she is taking full control of her situation and giving specific directions. Just like she always does! Go get them, Paige!!
A hug, YFSIL
An amazing child for sure. jsb
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