The Second Year Anniversary

I guess I'll never know how it was for Rosemary. For me it is very difficult still. The second year of missing Paigee didn't get easier.

Interesting

Parental Deliverance, Statistics
more Parental Deliverance

The 15th

Paigee, this would have been your 9th birthday. You would be in 3rd grade, buddies with all the boys. I will remember you throughout the day; days before and days after in fact. I look for you in all the blonde children I see. Soon, I will see your beautiful face again.

Madsie

Madison is doing well according to Mom. The end of the month has the normal 3 month interval testing. This time they may opt to do an ultrasound of the torso vs a CT Scan.

Another Loss

After the loss of a child, it is not uncommon for the parents to separate. Almost 2 years after Paigee's death, our marriage is now yet another casualty of that lost child. After a 23 year partnership, now a new loss to mourn. It's ok Paigee, we both continue to love you. Until we reunite in another life, my dreams are of you Paige.

biopsy

Monday Madsie is going in for a full day to complete the 4.5 month test. Normally this would have occured at 6 months but because of the early rejection last time they have accelerated the testing. Praying for good results.

Another life touched by Rhabdo

I just received an email from a woman in Oklahoma who is involved in raising money for an Amish child in Indiana who has been diagnosed with Rhabdo. The family is uninsured and anything we can do to spread the word to help raise money... The child's name is Mary Anne, she is 7. Her Web Site

4 years

Paigee, tomorrow will be the 4th anniversary of when your tumor was found. Funny how things like that can slip your mind. Mom didn't forget. Most times I can tell when something is bothering her, this time she had to remind me. Three roses arrived today in your memory sweetie. Thank you for the roses ! Paigee, I think about you all the time, but I can't deny though that I forget anniversaries like this one.

New Madison location

In addition to Madison's blog ( http://shesangopera.blogspot.com ) there is a new site (http://madsie.us)

Madison

If you are interested in Madison's progress..in the left corner of this blog is a category Our Links, under that is the link "Madison's Blog" Click there and keep abreast of Madsie's progress.

Madison

Tonight at 10:30 PM Madison had a kidney transplant.

Sad news

When the kidney arrived at the Hospital tonight the transplant team found something at issue with the organ.  They have postponed the transplant pending finding another suitable match.

More Exciting news

So the story goes..   Charlie and Lisa were on the way to pick Madison up at school.  Ok, ok.... 

The call did actually come in while Madsie was at School.  Charlie and Lisa rushed like chicken's with their heads cut off to the school to pick Madison up.  When they got there school had just got out.  And just like you'd expect, they couldn't find Madison anywhere.  Finally the school had to announce over the PA system, "will Madison Kitz please come to the office."  To say Madison was excited was an understatment.  The entire trip to Stanford she kept saying faster, faster.

Now they are at Stanford and going through the normal  Admission routine.  

To make a long story shorter: (Bullet Chart ala Vince Gallagher)
1) She has been started on antirejection drugs in preparation for the surgery.
2) She has also been placed on some type of Steroid.
3) when I talked to the family around 7:15 she was in bed haveing her blood drawn
4) having to have your blood drawn at 8 isn't a happy thing.
5) initially the surgery was scheduled for 8:30PM, then it was bumped to 9:30PM.  As of now the
plan is to begin the transplant procedure at 12.

On the downside, Madison's Grandmother got a speeding ticket for driving 80 in a 65 as she rushed to Stanford, and no, the Officer didn't let her off with a warning.

Answered Prayers

It finally happened.   Madison was yanked out of school today and rushed to Stanford.  A donor organ that was a perfect tissue match was found today.  I'm not clear yet about all the details.  I just got off the phone with Madsie's Mother.  I'm going to call back in 30 minutes or so, Madison's room was full of Doctors and Nurses.

Archives

Underneath "Our Links", "Previous Posts" is the Archives selection.  Click here and you can go back to any month in the blog; all the way back to December 2004.

A flutter of wings

A very close friend wrote this poem last year after Paigee's passing.  I loved it then and again now.  Thanks Julie.  A special thanks to Ben's mother Christine for last years butterflies.  I decided then, each year after that I would release butterflies on the anniversary of Paigee's death.  We all cried today as 70 so butterflies flew from the box they were in.  It was a beautiful sight.


She had shimmery golden pigtails
and a smile bright as sun.
Caterpillars were her latest delight.

She held her treasure
gently in her hands
and then
metamorphosis
life reborn in the small of her palm.

Up she went
on the butterfly's wings
into the light of heaven.

Julie Pratt