Still awake.

We've been awake most of the day, except for a few short naps. Although Paige is responsive it's mostly yes and no responses, she doesn't initiate conversation. She says she is comfortable, that's the least we can do.

Nana is taking a break for the next couple of weeks. Rosie and I wanted this time for just the 3 of us. If you didn't know, Nana was our rescue Angel from the very beginning of this ordeal 31 months ago. Nana is my Mother. A small consideration is now I don't have to sleep in Paigee's bed, I think we'll just close the door for some indeterminate amount of time.

Paigee lasted till 10pm today. I'm at a loss for why she will sleep 24 hours straight one day and then be up like she was on a normal schedule the next. And awake doesn't mean talking, laughing, nothing like her normal self. She stares off into space often, she answers yes and no questions and very rarely will respond with one or two word responses.

I thought that the year between Aug 04 and Aug 05 was hard; just knowing she would die and that there was nothing we could do. But this is worse. You can't really interact with her, and she gets upset if she thinks you are looking at her. I know we both are worn out emotionally and physically.

Categories: Daily