March 2004 DullesDaily Update
12:PM Paigee has been asleep since yesterday afternoon. She isn't responding when we talk to her today. Her feet and hands are swollen and cold to the touch. And if that isn't bad enough she hasn't urinated in 2 days. We aren't expecting this will last much longer.
4:00 PM Paigee has just had a seizure. I've noticed today that she is not able to squeeze her right hand but she can her left. I'm wondering if she had a mini stroke. This is a Nightmare.
8:00 PM Although she didn't respond today, we know she still hears us and is confident in our love, and believes that we will all be together again. Although Rosie and I are still able to remain numb, the swriling emotions sit very near the surface. I have to admit this is the hardest thing I've ever experienced. I just can't imagine how Chad , Ben and Kelly's families have survived this. I read where 6 million was donated for Rhabo research recently.
RMS Research
Now that Paige has had a seizure the procedure is to administer Phenobarbital every 12 hours. This with the Morphine means there will be no glimmer of her anymore, only restful sleep. I just feel like there were so many things we didn't get to do. My only hope is there is a Heaven so we can be reunited once again. Every parent should be so fortunate as to have an Angel like Paigee in their home.
Categories: Daily
posted by c @ 11:56 AM
3 Comments:
Thinking of Paige, you and Rosemary~ love Liz, Sam and Celso
I only wish I could take it away. We're praying for you. My love to all three of you - Schmary, Randy & Dad Davis
Lori here,
Don't know how we get through it either. The one thing I can see that we all have in common is strength when we least expect it. I know the numbness you speak of. I was in denial, but a good denial. The denial helped me be there for Chad and give him all of the love and support and snuggling and strength that he needed. I was able to smile at him and tickle him at the same time my heart was breaking. It is an "emergency gift" that God gave us for our children.
Trust me, the strength that you feel now is really overrated when the grief really begins.
Paigee is so lucky to have you two. Ben has two awesome parents too.
I wish we could have met on another level, but however we met, is no matter. I will be here if you need to vent. I love to vent.
In fact, I owe Christine a call...!
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